For Families Just Diagnosed with MED13L Syndrome

 We understand that receiving a diagnosis of MED13L syndrome can feel overwhelming and uncertain. Please know that you are not alone on this journey.

This is a difficult time, but there is hope.

Many families have walked this path before you and have found strength, support, and a sense of community. You’ll find that there are resources, information, and others who truly understand what you are going through.

• Take your time. It’s normal to feel a lot of emotions right now. There’s no rush to have all the answers.
   
• Learn at your own pace. Information about MED13L syndrome can be complex, but every small step forward helps.
   
• Reach out for support. Whether it is for emotional support or questions about care, don't hesitate to talk to others who understand the journey.
   
• Stay connected. There are families, medical professionals, and resources available to walk with you and your loved ones.
   

It may feel like a lot, but you are not alone in this. There is a community here to help you find your way.