MED13L Foundation

At MED13L UK, we are committed to building strong international relationships that support families living with MED13L syndrome. One of our key partners is the MED13L Foundation in the United States, a passionate organization working to raise awareness, provide support, and promote research related to MED13L syndrome across the United States.

Their work focuses on increasing visibility of the condition, offering practical and emotional support to families, and encouraging research that will help us all better understand MED13L syndrome. They are a vital source of information for English-speaking families both in the United States and around the world.

They can be contacted through their website: https://med13l.org/

Social Media:

• Facebook: MED13L Foundation
   
• Instagram: @MED13LFoundation
   

By working together, we are able to share expertise, improve access to support, and create a more connected MED13L community. This collaboration ensures that families in the UK and the United States benefit from a broader network and a shared commitment to making life better for everyone affected by this rare condition.

We encourage families to connect with the MED13L Foundation via their website and social media platforms to be part of this growing support system.